For Medicaid Service Coordination resources, please visit the Advanced Care Alliance.
For information on People First Care Coordination, please click the image to the left.
Disability Rights New York (DRNY) is the federally and state-authorized Protection and Advocacy System and Client Assistance Program (P&A/CAP) for people with disabilities in New York State.
DRNY provides legal and other advocacy services to advance and protect the rights of people with disabilities and to ensure that they are free from abuse and neglect and unlawful discrimination.
DRNY is required, on an annual basis, to create subject matter priorities for its programs and to solicit comments and suggestions about those priorities from people with disabilities and others throughout the state. Once finalized, these priorities will be a statement of where DRNY will focus its advocacy efforts and resources on behalf of people with disabilities during the next fiscal year. Click here or on the banner above to participate!
DRNY provides legal and other advocacy services to advance and protect the rights of people with disabilities and to ensure that they are free from abuse and neglect and unlawful discrimination.
DRNY is required, on an annual basis, to create subject matter priorities for its programs and to solicit comments and suggestions about those priorities from people with disabilities and others throughout the state. Once finalized, these priorities will be a statement of where DRNY will focus its advocacy efforts and resources on behalf of people with disabilities during the next fiscal year. Click here or on the banner above to participate!
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North Fork Therapeutic Riding Program-
a non-profit 501(c)(3) organization. Our program offers customized therapeutic riding lessons designed to help each individual reach their fullest potential. Riders of all ages and disabilities both physical and emotional are provided with opportunities to improve their lives. Click the link to find out more about the program at FoxRun Farm. www.NorthForkTripNY.org |
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Report to the Governor: Keep the Promise
Community-based housing for people with intellectual and developmental disabilities. Click HERE to read the document. |
Information on low income rural housing grants and opportunities through the USDA. Options for individual loans and housing development grants for the elderly, disabled, and low income residents.
Click Here for more information
Click Here for more information
L’Arche Long Island
is a community where people with and without intellectual disabilities live together as peers, As part of the worldwide L’Arche movement, we are committed to creating inclusive communities of faith and friendship, and to transforming society through relationships that cross social boundaries.
After a 4-year effort of love, commitment, and the diligent efforts of our Board of Directors and Friends of L’Arche, we have succeeded in opening our first home in Eastern Long Island! Our community is located in Riverhead’s very own Polish Town which has proven to be the perfect choice; it has a growing lovely downtown area and emerging developments with shopping, preforming arts theaters, and restaurants. Riverhead is the gateway to both the Hamptons as well as the wine country of Long Island.
L’Arche Long Island (LLI) and East End Disability Associates, Inc. (EEDA) began working together to plan the establishment of Long Island’s first L’Arche community, which will be one home, a community center, and several neighboring apartments. It is our goal to further develop our partnership with East End Disability Associates Inc. in order to offer educational and social activities that promote interactions between our members and the communities in which we live.
Our home has a total of seven bedrooms, and our residents are both people with and without developmental disabilities who live and share their lives together. Our Community Center is adjacent to the home and serves as a space for our community gatherings, prayer, and celebration. Our doors are always open to meet new friends within the community, whether for dinner, a game night, or just for a quick hello and cup of coffee.
is a community where people with and without intellectual disabilities live together as peers, As part of the worldwide L’Arche movement, we are committed to creating inclusive communities of faith and friendship, and to transforming society through relationships that cross social boundaries.
After a 4-year effort of love, commitment, and the diligent efforts of our Board of Directors and Friends of L’Arche, we have succeeded in opening our first home in Eastern Long Island! Our community is located in Riverhead’s very own Polish Town which has proven to be the perfect choice; it has a growing lovely downtown area and emerging developments with shopping, preforming arts theaters, and restaurants. Riverhead is the gateway to both the Hamptons as well as the wine country of Long Island.
L’Arche Long Island (LLI) and East End Disability Associates, Inc. (EEDA) began working together to plan the establishment of Long Island’s first L’Arche community, which will be one home, a community center, and several neighboring apartments. It is our goal to further develop our partnership with East End Disability Associates Inc. in order to offer educational and social activities that promote interactions between our members and the communities in which we live.
Our home has a total of seven bedrooms, and our residents are both people with and without developmental disabilities who live and share their lives together. Our Community Center is adjacent to the home and serves as a space for our community gatherings, prayer, and celebration. Our doors are always open to meet new friends within the community, whether for dinner, a game night, or just for a quick hello and cup of coffee.
Resources for Parents, Students, and Educators
22 Tips for Teaching Students with Autism Spectrum Disorders
50 Must-See Blogs for Special Education Teachers
The Ultimate Guide to Water Safety for Parents and Caregivers of Children with Autism
Teaching Your Child About Peers with Special Needs
22 Tips for Teaching Students with Autism Spectrum Disorders
50 Must-See Blogs for Special Education Teachers
The Ultimate Guide to Water Safety for Parents and Caregivers of Children with Autism
Teaching Your Child About Peers with Special Needs
Useful Links
Helpful Links from Parent to Parent of NYS:
Advocacy 101 – items that help strengthen advocacy skills –(Communication skills, parenting skills, letter writing, speaking with professionals, asking questions) What questions should you ask when selecting a surgeon for your child?http://health.usnews.com/health-news/best-childrens-hospitals/articles/2008/05/29/seeking-a-childrens-surgeon
What does extreme heat do to medications?http://www.nytimes.com/2011/08/16/health/16consumer.html?_r=1&ref=health
Meeting health needs at school (i.e. What are the legal obligations of schools to provide health-related services and therapies? What are 504 accommodations to assure equal access?) Fantastic series of articles from Parenting Children with Health Issues to help prepare for the return to school:http://www.parentingchildrenwithhealthissues.com/articles/article/4270854/161211.htm
Powerful insights for teachers on the experiences of students with special health care needs are found in this collection of student quotations so aptly titled “Tips for Teachers, the Blackboard Experts from Kids with Medical Problems, the Band-Aide Experts”:http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/teacher.html
Who helps with what? Which state agencies are involved in health care and health coverage? What do medical and managed care terms mean? What should families look for in selecting a provider? What questions should families ask? A guide to understanding Medicaid Personal Care or Home Attendant Services from NY Health Access: http://wnylc.com/health/entry/7/
What is the Children and Youth with Special Health Care Needs Program in New York State?http://www.health.ny.gov/community/special_needs/
Parent-to-parent support skill-building (How can parents provide support and assistance to families without substituting their judgment? Understanding and respecting cultural diversity. How can parents be culturally competent in working with diverse families? How can parents emotionally support, inform, and educate parents so that they are strong, knowledgeable, and confident in caring for their child with special health needs?)
Deborah Phelps, Mom to Olympic athlete Michael Phelps, discusses Michael’s ADHD diagnosis in this interview with Good Housekeeping:http://www.goodhousekeeping.com/family/inspirational-people/deborah-phelps-interview
This New York Times blog entry discusses the anxiety associated with waiting for test results, offers questions to ask pre-test to assist with coping, and explores the potential impact direct access to test results might have : http://well.blogs.nytimes.com/2012/07/23/the-anxiety-of-waiting-for-test-results/
This video clip from Kaiser Health News explains travel insurance for those with pre-existing conditions:
http://www.kaiserhealthnews.org/Multimedia/2012/August/andrews-Q-and-A-travel-insurance.aspx
The Florida Developmental Disabilities Council website offers, in English and Spanish, “First Steps: A Guide for Parents of Children with Developmental Disabilities”. This guide takes parents through early diagnosis, individual reactions, family adjustments, educational needs, etc. http://www.fddc.org/publications/first-steps
Useful Links
- New York State Office for People with Developmental Disabilities (NYSOPWDD)
- New York State Developmental Disabilities Planning Council
- Parent to Parent of New York State
- Nassau/Suffolk Law Services Committee, Inc.
- Centers for Disease Control and Prevention: Developmental Disabilities
- Autism Speaks
- Special Olympics New York
- Best Buddies New York
- Surfers Healing
- Social Security Disability Resource Center
- Self-Advocacy Association of New York State
- Cerebral Palsy Guide
- Autism and Safety- It's Unpredictable
Helpful Links from Parent to Parent of NYS:
Advocacy 101 – items that help strengthen advocacy skills –(Communication skills, parenting skills, letter writing, speaking with professionals, asking questions) What questions should you ask when selecting a surgeon for your child?http://health.usnews.com/health-news/best-childrens-hospitals/articles/2008/05/29/seeking-a-childrens-surgeon
What does extreme heat do to medications?http://www.nytimes.com/2011/08/16/health/16consumer.html?_r=1&ref=health
Meeting health needs at school (i.e. What are the legal obligations of schools to provide health-related services and therapies? What are 504 accommodations to assure equal access?) Fantastic series of articles from Parenting Children with Health Issues to help prepare for the return to school:http://www.parentingchildrenwithhealthissues.com/articles/article/4270854/161211.htm
Powerful insights for teachers on the experiences of students with special health care needs are found in this collection of student quotations so aptly titled “Tips for Teachers, the Blackboard Experts from Kids with Medical Problems, the Band-Aide Experts”:http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/teacher.html
Who helps with what? Which state agencies are involved in health care and health coverage? What do medical and managed care terms mean? What should families look for in selecting a provider? What questions should families ask? A guide to understanding Medicaid Personal Care or Home Attendant Services from NY Health Access: http://wnylc.com/health/entry/7/
What is the Children and Youth with Special Health Care Needs Program in New York State?http://www.health.ny.gov/community/special_needs/
Parent-to-parent support skill-building (How can parents provide support and assistance to families without substituting their judgment? Understanding and respecting cultural diversity. How can parents be culturally competent in working with diverse families? How can parents emotionally support, inform, and educate parents so that they are strong, knowledgeable, and confident in caring for their child with special health needs?)
Deborah Phelps, Mom to Olympic athlete Michael Phelps, discusses Michael’s ADHD diagnosis in this interview with Good Housekeeping:http://www.goodhousekeeping.com/family/inspirational-people/deborah-phelps-interview
This New York Times blog entry discusses the anxiety associated with waiting for test results, offers questions to ask pre-test to assist with coping, and explores the potential impact direct access to test results might have : http://well.blogs.nytimes.com/2012/07/23/the-anxiety-of-waiting-for-test-results/
This video clip from Kaiser Health News explains travel insurance for those with pre-existing conditions:
http://www.kaiserhealthnews.org/Multimedia/2012/August/andrews-Q-and-A-travel-insurance.aspx
The Florida Developmental Disabilities Council website offers, in English and Spanish, “First Steps: A Guide for Parents of Children with Developmental Disabilities”. This guide takes parents through early diagnosis, individual reactions, family adjustments, educational needs, etc. http://www.fddc.org/publications/first-steps
